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Xzeina · Apr 11, 2020 5:59 PM

I got diagnosed with a premenstrual disorder today, and I feel broken now. I'm trying to just look fine and happy since it's a family member's birthday tonight, but it's really hard and I really don't want to cry in front of people. I don't know what to do, I'm not sure if I'll be getting medication to help or not, and I don't know how to keep myself in check. If anyone has some advice or personal experience with this, I feel like I could use some support/new friends.
Thanks for at least taking the time to read this.

KaysaMesa · Apr 11, 2020 7:23 PM

I don’t think I have anything helpful, but I’m sorry you’re going through this!

DejaRea · Apr 11, 2020 8:14 PM

Hugs.

No matter how life-changing a new diagnosis can be, you are not broken.

Xzeina · Apr 11, 2020 8:41 PM

Update: the birthday party we threw was kind of fun, but I couldn't hear myself over my Dad during karaoke at all, lol. And all that dancing made me feel a little ill, but I didn't throw up so I'm alright.

Thank you both for your kind words. :x
Wish me luck please, because I have yet to tell my family, close friends, and boyfriend about this new diagnosis. I know that they won't do anything rude or mean or anything, but I'm still nervous/scared since it's a new thing that I will probably have for a long time(maybe even the rest of my life).

Pagan · Apr 11, 2020 9:41 PM

Be kind to yourself, this is all very new.

Hugs.

minimum · Apr 12, 2020 2:05 AM

The scariest thing is not knowing. Now that you have your diagnosis see what you can find out about your condition. Make sure you only use reputable sources, the internet is full of false information. Some conditions have self help groups with others who are living with your condition, these are worth looking into. Make sure that when you tell your family and friends that you let them know that you are scared, their love and support are what you need to get through this. Finally, take one day at a time, and it is OK if you have bad days and feel down, that is perfectly normal.

I hope things improve for you.
@};- ~O)

Ammit · Apr 12, 2020 4:09 AM

If you were diagnosed with premenstrual disorder that means your periods have been pretty bad. A diagnosis is good news. That means you can start working with your doctor to find solutions so your periods won't be so horrible. This is the first step to a healthier tomorrow. At the same time feeling upset about the diagnosis is completely valid. It is normal to grieve while we work out what the future is going to look like.

I have PCOS, a semi-related condition and an official diagnosis was a massive help in getting me treatment and support. You also don't need to tell your family and friends if you don't want too. Your medical condition is your own and they don't have an expectation of being informed about it. I don't make my PCOS a secret and I will happily talk about it if it comes up but I never sat my friends down and informed them. It is nothing life-threatening. You will find your way forward. I am really glad you have a doctor that took your symptoms seriously. A good doctor who believes you is such a blessing.

Xzeina · Apr 12, 2020 10:56 AM

My Mom has PCOS so I can sort of sympathize with you Ammit, even though it's from an outside veiw, lol.

DragonRun · Apr 12, 2020 2:53 PM

I had/have PCOS and endometriosis. Not exactly the same as you. My diagnosis did not make me happy, but I found once I had it, it allowed me to understand what was happening. It is not easy, but work with your Dr and you may be able to come up with treatments that can help. A good Dr will be your best friend. Sending you comforting vibes.

Kholours · Jun 8, 2020 7:29 PM

I was diagnosed with PCOS aswell (im 32) last year but it took about 10 yrs of struggling to get any Dr to listen to me when I told them something was wrong. Now that I have been diagnosed it has helped with everything though we are still working on finding the main cause for my pain whether its PCOS or something else as I also have a clotting disorder so it makes treatment for my PCOS pretty difficult.

But I can tell you talking to someone helps, so don't put up that fake front of everything is fine, its not healthy to keep things bottled up and secret from your close family and friends. Humans are herd animals like horses, dogs, and elephants we need that community to stay healthy emotionally, don't cut off that support if you are struggling :)

Tatiana · Jun 8, 2020 9:46 PM

I've got PCOS. Not the same, but I feel you, hang in there!

NurffysBarn · Jan 7, 2021 1:13 PM

You can do this. Prayers all turns out well for you. I agree you do not have to tell any one if you do not want to, it is all up to you.

DejaRea · Jan 9, 2021 9:16 PM

So how are you feeling now that you've had a chance to catch your breath?

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